• Ethan's Path

    February 8th, 2013 – Ethan has his regular check-up at the Cleveland Clinic with the Pediatric Nephrologist; which is over an hour from our home. He has broken the lowest percentile plateau for weight at his age for the first time.We are elated, Ethan is a couple months away from 10 years old and weighs 55 lbs, ... Read More
  • Ways to Support BSF

    The Bartter Syndrome Foundation was built by two loving parents of an amazing son with bartter syndrome. Our dreams of creating an organization that brings other bartter patients together into the Bartter Family and aids in clinical research into this disorder has become a reality. However, the foundation is maintained by ... Read More
  • Please help support and spread awareness for Bartter & Gitelman Syndrome

    By purchasing a Bracelet, you are making an effort to reach out to those affected by rare genetic disorders and show your support by promoting awareness. Read More
  • BARTTER SYNDROME AWARENESS MONTH VOTE PASSES OHIO SENATE

    I ask the members of the Senate Medicaid and Health and Human Services Committee to join us in recognizing the month of May as Bartter Syndrome Awareness Month. Read More
  • National Human Genome Project Deal

    A new funding plan by the National Human Genome Research institute (NHGRI) sharpens the focus of its flagship Genome Sequencing Program on medical applications. In addition to on-going studies, the four-year, $416 million plan launched new efforts to find causes of rare inherited diseases Read More
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What is BARTTER SYNDROME?

Senate Hearing

  • Low-phosphorus diet: Best for kidney disease?

    NUTRITION Feb 6, 2014 | 00:46 am

    Low-phosphorus diet: Best for kidney disease? Why is a low-phosphorus diet useful in managing kidney disease? What foods contain phosphorus?Calcium and phosphorus, which are minerals, help build strong bones. Healthy kidneys help regulate the level of phosphorus in your blood by removing extra phosphorus. If your[…]

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  • Potassium in Your Food

    NUTRITION Feb 6, 2014 | 00:40 am

    Potassium in Your Food Potassium (K) is one of the most important micronutrients required by the human body. Bartter syndrome is a Potassium-wasting disorder; therefore, it is pertinent that carriers understand the foods that contain high amounts of this nutrient. A diet rich in[…]

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  • BSND Gene

    RESEARCH Feb 4, 2014 | 01:05 am

    BSND Gene Seoul Korea, Tues., February 20, 2011 – A sequence analysis of the BSND gene showed that the affected males were homozygous for a missense G47R mutation in exon 1 of BSND. These findings suggest that the G47R mutation results in[…]

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  • National Human Genome Project Deal

    RESEARCH Feb 3, 2014 | 23:58 pm

    National Human Genome Project Deal Bethesda, MD, Tues., December 6, 2011 – A new funding plan by the National Human Genome Research institute (NHGRI) sharpens the focus of its flagship Genome Sequencing Program on medical applications. In addition to on-going studies, the four-year, $416 million[…]

    Read more...
  • BARTTER SYNDROME AWARENESS MONTH VOTE PASSES OHIO SENATE

    NEWS May 29, 2014 | 23:18 pm

    BARTTER SYNDROME AWARENESS MONTH VOTE PASSES OHIO SENATE Chairwoman Jones and members of the Senate Medicaid and Health and Human Services Committee; I would like to thank all of you for allowing me to testify today and personally thank both Senator, Cafaro and Schiavoni for introducing Senate Bill 281 to the Ohio Senate; nominating the month of May[…]

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  • EthansCure Supports Rare Disease Day 2014

    NEWS Feb 27, 2014 | 00:04 am

    EthansCure Supports Rare Disease Day 2014 HOWLAND - It's not just a handprint on a poster. It's a mark of support for people who suffer from diseases most people never knew existed.Students at North Road Intermediate School in Howland joined painted hands to help raise awareness of conditions such as Bartter Syndrome.There's only a one-in-a-million chance[…]

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  • EthansCure.org has attained 501(c)3 Public Charity Status from the IRS

    EVENTS Sep 30, 2014 | 11:10 am

    EthansCure.org has attained 501(c)3 Public Charity Status from the IRS The Bartter Syndrome Foundation, 'EthansCure.org' has received verification from the United States Internal Revenue Service for 501(c)3 public charity status. A public charity, identified by the Internal Revenue Service (IRS) as "not a private foundation", normally receives a substantial part of its income, directly or indirectly, from the general public[…]

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  • Help Spread Awareness for Bartter and Gitelman Syndrome

    EVENTS Mar 25, 2014 | 01:35 am

    Help Spread Awareness for Bartter and Gitelman Syndrome The vast majority of the population is unaware and not informed about the myriad of individuals suffering from rare genetic kidney disorders. By purchasing a Bracelet, you are making an effort to reach out to those affected by rare genetic disorders and show your support by promoting awareness.  The $5[…]

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