-
Ethan's Path
February 8th, 2013 – Ethan has his regular check-up at the Cleveland Clinic with the Pediatric Nephrologist; which is over an hour from our home. He has broken the lowest percentile plateau for weight at his age for the first time.We are elated, Ethan is a couple months away from 10 years old and weighs 55 lbs, ... Read More -
Ways to Support BSF
The Bartter Syndrome Foundation was built by two loving parents of an amazing son with bartter syndrome. Our dreams of creating an organization that brings other bartter patients together into the Bartter Family and aids in clinical research into this disorder has become a reality. However, the foundation is maintained by ... Read More -
Please help support and spread awareness for Bartter & Gitelman Syndrome
By purchasing a Bracelet, you are making an effort to reach out to those affected by rare genetic disorders and show your support by promoting awareness. Read More -
BARTTER SYNDROME AWARENESS MONTH VOTE PASSES OHIO SENATE
I ask the members of the Senate Medicaid and Health and Human Services Committee to join us in recognizing the month of May as Bartter Syndrome Awareness Month. Read More -
HAPPY 11TH BIRTHDAY ETHAN!!!
Ethan, You are truly an inspiration to us All. We wish you a very Happy 11th Birthday! May all your dreams and wishes come true. Keep on fighting for yourself and all of the Bartter Syndrome carriers around the world. God Bless and enjoy your day. Read More -
National Human Genome Project Deal
A new funding plan by the National Human Genome Research institute (NHGRI) sharpens the focus of its flagship Genome Sequencing Program on medical applications. In addition to on-going studies, the four-year, $416 million plan launched new efforts to find causes of rare inherited diseases Read More
- 1
- 2
- 3
- 4
- 5
- 6
-
BARTTER SYNDROME AWARENESS MONTH VOTE PASSES OHIO SENATE
NEWS May 29, 2014 | 23:18 pm
Read more...
Chairwoman Jones and members of the Senate Medicaid and Health and Human Services Committee; I would like to thank all of you for allowing me to testify today and personally thank both Senator, Cafaro and Schiavoni for introducing Senate Bill[…] -
EthansCure Supports Rare Disease Day 2014
NEWS Feb 27, 2014 | 00:04 am
Read more...
HOWLAND - It's not just a handprint on a poster. It's a mark of support for people who suffer from diseases most people never knew existed.Students at North Road Intermediate School in Howland joined painted hands to help raise awareness[…] -
Meeting with Senator Capri Cafaro
NEWS Feb 26, 2014 | 23:46 pm
Read more...
Capri Cafaro, District 32 of the Ohio Senate has agreed to co-sponsor and conduct a joint resolution with Senator Joe Schiavoni to promote an Awareness Day for Bartter and Gitelman Syndrome. We met with Senator Cafaro shortly after our meeting[…] -
Meeting with Senator Joe Schiavoni
NEWS Feb 26, 2014 | 23:31 pm
Read more...
Senator Joe Schiavoni, District 33of the Ohio Senate has agreed to assist the Bartter Syndrome Foundation in creating an Awareness week for Bartter and Gitelman Syndrome. Senator Schiavoni has proposed a resolution for nominating a week in the month of[…] -
Bartter & Gitelman Syndrome Awareness Day
NEWS Feb 26, 2014 | 22:56 pm
Read more...
Bartter syndrome is not a single disorder but rather a set of closely related kidney disorders that cause an imbalance of potassium, sodium, chloride, and related molecules in the body. It is thought to be caused by a genetic mutation[…]
-
Low-phosphorus diet: Best for kidney disease?
NUTRITION Feb 6, 2014 | 00:46 am
Read more...
Why is a low-phosphorus diet useful in managing kidney disease? What foods contain phosphorus?Calcium and phosphorus, which are minerals, help build strong bones. Healthy kidneys help regulate the level of phosphorus in your blood by removing extra phosphorus. If your[…] -
Potassium in Your Food
NUTRITION Feb 6, 2014 | 00:40 am
Read more...
Potassium (K) is one of the most important micronutrients required by the human body. Bartter syndrome is a Potassium-wasting disorder; therefore, it is pertinent that carriers understand the foods that contain high amounts of this nutrient. A diet rich in[…] -
BSND Gene
RESEARCH Feb 4, 2014 | 01:05 am
Read more...
Seoul Korea, Tues., February 20, 2011 – A sequence analysis of the BSND gene showed that the affected males were homozygous for a missense G47R mutation in exon 1 of BSND. These findings suggest that the G47R mutation results in[…] -
National Human Genome Project Deal
RESEARCH Feb 3, 2014 | 23:58 pm
Read more...
Bethesda, MD, Tues., December 6, 2011 – A new funding plan by the National Human Genome Research institute (NHGRI) sharpens the focus of its flagship Genome Sequencing Program on medical applications. In addition to on-going studies, the four-year, $416 million[…]
-
Help Spread Awareness for Bartter and Gitelman Syndrome
EVENTS Mar 25, 2014 | 01:35 am
Read more...
The vast majority of the population is unaware and not informed about the myriad of individuals suffering from rare genetic kidney disorders. By purchasing a Bracelet, you are making an effort to reach out to those affected by rare genetic[…] -
EthansCure Winter Fundraiser 2013
EVENTS Feb 9, 2014 | 23:57 pm
Read more...
December 7th 2013. Thanks to all that came out in support of those with rare genetic kidney disorders. We had a great turn-out at Jack Perry's Pub & Grill. A special thanks goes out to Brent Furrie for hosting the[…] -
EthansCure Halloween Fundraiser
EVENTS Feb 9, 2014 | 23:33 pm
Read more...
October 22, 2013. The Bartter Syndrome Foundation held its first ever Fundraiser! The event was a Halloween Fundraiser and included a haunted maze, games for children, raffle baskets and 50/50. Thank you to all our sponsors and volunteers for making[…]
