• 'Bubble kid' success puts gene therapy back on track

    RESEARCH Mar 19, 2015 | 23:25 pm

    'Bubble kid' success puts gene therapy back on track MOST parents dream of a 5-week-old baby who sleeps through the night, but Aga Warnell knew something was wrong. Her baby, Nina, just wasn't hungry in the way her other daughters had been.Within weeks, Nina became very ill, says her[…]

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  • Bartter Syndrome and Gitelman Syndrome

    RESEARCH Dec 28, 2014 | 17:21 pm

    Bartter Syndrome and Gitelman Syndrome  Bartter syndrome and Gitelman syndrome are characterized by fluid, electrolyte, urinary, and hormonal abnormalities, including renal K, Na, Cl, and H wasting; hypokalemia; hyperreninemia and hyperaldosteronism without hypertension; and metabolic alkalosis. Findings include electrolyte, growth, and sometimes neuromuscular abnormalities. Diagnosis[…]

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  • The Salty Six: Six Foods That Load Your Diet With Salt

    NUTRITION Dec 28, 2014 | 17:05 pm

    The Salty Six: Six Foods That Load Your Diet With Salt Eating too many salty foods can create all sorts of health problems, including high blood pressure. What you may not know is that a lot of common foods are packed with excess sodium.“Excess sodium in our diets has less to[…]

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  • Low-phosphorus diet: Best for kidney disease?

    NUTRITION Feb 6, 2014 | 00:46 am

    Low-phosphorus diet: Best for kidney disease? Why is a low-phosphorus diet useful in managing kidney disease? What foods contain phosphorus?Calcium and phosphorus, which are minerals, help build strong bones. Healthy kidneys help regulate the level of phosphorus in your blood by removing extra phosphorus. If your[…]

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  • Rare Disease Day Conference 2015 at Ohio Capital

    NEWS Mar 17, 2015 | 01:06 am

    Rare Disease Day Conference 2015 at Ohio Capital EthansCure was present at the Ohio Capital in Columbus supporting Rare Disease Day. We would like to thank NORD for organizing the event and helping us all to raise awareness for barter syndrome. Daniel Hoffman spoke on behalf of EthansCure educating those present on Bartter Syndrome and Tier 3 Drugs.[…]

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  • Magnesium Lotion Recipe

    NEWS Feb 18, 2015 | 14:15 pm

    Magnesium Lotion Recipe Please Click on the Link Below to access the Magnesium Lotion Recipe submitted by Elinor Woods. We thank you for your contribution. 

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  • Thank You Salvatores and Generous Donors

    EVENTS Feb 6, 2015 | 08:38 am

    Thank You Salvatores and Generous Donors We would like to send out a special thanks to Salvatore's Restaurants and Rose for sponsoring a fundraiser last weekend for the Bartter Syndrome Foundation. Your efforts will not go unnoticed and it is the support and generosity from people like you that allow us to continue to raise awareness[…]

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  • EthansCure.org has attained 501(c)3 Public Charity Status from the IRS

    EVENTS Sep 30, 2014 | 11:10 am

    EthansCure.org has attained 501(c)3 Public Charity Status from the IRS The Bartter Syndrome Foundation, 'EthansCure.org' has received verification from the United States Internal Revenue Service for 501(c)3 public charity status. A public charity, identified by the Internal Revenue Service (IRS) as "not a private foundation", normally receives a substantial part of its income, directly or indirectly, from the general public[…]

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What is BARTTER SYNDROME?