In the News
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Gene Therapy Corrects Factor VIII Levels in Hemophilia APosted on: 7 August 2017, source: Medscape
Patients with hemophilia...- First gene therapy — 'a true living drug' — on the cusp of FDA approval
Posted on: 14 July 2017, source: Chicago Tribune
Food and... - First gene therapy — 'a true living drug' — on the cusp of FDA approval
Ethan's Journey
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Ohio Rare Disease Day 2016
ETHAN'S JOURNEY Feb 17, 2016 | 15:25 pm
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Created by Ethan Hoffman -
Rare Disease Day and EthansCure Coalition
ETHAN'S JOURNEY Feb 15, 2015 | 15:32 pm
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On February 18th there will be a seminar in Columbus, Ohio benefiting rare diseases. EthansCure and the Bartter Syndrome Foundation will be speaking on behalf of barter syndrome. We will be introducing[…]